Self-management by older people living with cancer and multi-morbidity: a qualitative study
Corbett T, Lee K, Cummings A, Calman L, Farrington N, Lewis L, Young A, Richardson A, Foster C and Bridges J
Self-management by older people living with cancer and multi-morbidity: a qualitative study
Corbett T, Lee K, Cummings A, Calman L, Farrington N, Lewis L, Young A, Richardson A, Foster C and Bridges J
Over half of individuals diagnosed with cancer are aged over 70 years, and more than 75% of those with cancer report at least one other medical condition. Having multiple conditions alongside cancer in old age may lower functional status, greater likelihood of treatment complications and less favourable prognoses. This qualitative study explored how older people with long-term chronic conditions manage their health and meet their health-related goals after they have completed treatment for cancer.
Moving our care home: A qualitative study of the views and experiences of residents, relatives and staff
Ibrahim K, Baron S, Lathlean J, Bridges J, McGrath N and Roberts HC
Moving our care home: A qualitative study of the views and experiences of residents, relatives and staff
Ibrahim K, Baron S, Lathlean J, Bridges J, McGrath N and Roberts HC
Involuntary relocation when care homes close can be detrimental to residents' health and well-being and is associated with increased mortality. There is little formal evidence to support whether planning can mitigate the impact of such moves. This study aimed to understand the experiences of a whole care home relocation where staff and residents relocated together using existing published guidance.
'I'll put up with things for a long time before I need to call anybody': Face work, the Total Institution and the perpetuation of care inequalities
Hope J, Schoonhoven L, Griffiths P, Gould L and Bridges J
'I'll put up with things for a long time before I need to call anybody': Face work, the Total Institution and the perpetuation of care inequalities
Hope J, Schoonhoven L, Griffiths P, Gould L and Bridges J
Failures in fundamental care (e.g. nutrition or pain-relief) for hospitalised patients can have serious consequences, including avoidable deaths. Policy rhetoric of 'shared decision-making' fails to consider how structural constraints and power dynamics limit patient agency in nursing staff-patient interactions. Goffman's concepts of face work, the presentation of self and the Total Institution shaped our analysis of interview and focus group data from hospital patients. Patients avoided threatening 'good' patient and staff face by only requesting missed care when staff face was convincing as 'caring' and 'available' ('engaged'). Patients did not request care from 'distracted' staff ('caring' but not 'available'), whilst patient requests were ignored in Total Institution-like 'dismissive' interactions. This meant patients experienced missed care with both 'distracted' and 'dismissive' staff. Patients with higher support needs were less able to carry out their own missed care to protect staff face, so experienced more serious care omissions. These findings show that many elements of the Total Institution survive in modern healthcare settings despite attempts to support individualised care. Unless nursing staff can maintain face as 'engaged' (despite organisational constraints that can reduce their capacity to do so) patient participation in care decisions will remain at the level of rhetoric.
Use of the Quality of Interactions Schedule (QuIS) in assessing negative staff-patient interactions in acute care settings for older people: A content validation study
Young A, Frankland J and Bridges J
Use of the Quality of Interactions Schedule (QuIS) in assessing negative staff-patient interactions in acute care settings for older people: A content validation study
Young A, Frankland J and Bridges J
The Quality of Interactions Schedule (QuIS) is an observational tool to assess the quality of staff-patient interactions in a healthcare context. QuIS is a promising measure for the evaluation of compassionate care, particularly where care is being delivered to patient populations, such as older people, who may be excluded from self-completion data collection methods. This study investigates the content validity of QuIS in identification of negative staff-patient interactions in acute care.
Association between Quality of Interactions Schedule ratings and care experiences of people with a dementia in general hospital settings: a validation study
Lee K, Frankland J, Griffiths P, Hewer-Richards L, Young A and Bridges J
Association between Quality of Interactions Schedule ratings and care experiences of people with a dementia in general hospital settings: a validation study
Lee K, Frankland J, Griffiths P, Hewer-Richards L, Young A and Bridges J
Establishing methods to evaluate interactions between hospital staff and patients with a dementia is vital to inform care delivery. This study aimed to assess the validity of Quality of Interactions Schedule (QuIS) ratings in relation to the care experiences of people with a dementia in a general hospital setting.