Dementia with Lewy bodies (DLB) is the second most common neurodegenerative cause of dementia. However, people with DLB often experience missed or delayed diagnosis. The Clinical Record Interactive Search (CRIS) system allows research and service improvement work to take place that has previously not been possible, by allowing access to deidentified patient records. In this project we will use CRIS to explore patient outcomes in Dementia with Lewy bodies within Southern Health NHS Foundation Trust, including duration of disease, mortality and rates of hospital admission. We will also explore early clinical features using Natural Language Processing, in collaboration with other UK centres.
Principal Investigator: Dr Jay Amin